The National Patient Organisation Network (NPON) is the professional body for patient groups in Australia. In 2024, members participated in an audit of activities to demonstrate our collective contribution to the health system.
NPON members have a combined health system investment of over $200M, with income reflecting 39% from donations and bequests, 30% from goods and services, 21% from the government, 1% from investments, and 9% from other sources. Of the organisations that received government funding, two received over $10M, three received between one and $4M, four received between $500,000 and $1M, nineteen received between $100,000 and $300,000, fourteen received between $10,000 and $99,000, and six received between $900 and $6,000.
NPON Australia Members
22q Foundation Australia & NZ
Addisons Australia
Allergy & Anaphylaxis Australia
Angelman Syndrome Association Australia
Ankylosing Spondylitis Victoria Inc
Arthritis Australia
Arthritis NSW
Arthritis Queensland
ausEE Inc.
Australia Alopecia Areata Foundation
Australian Dysphonia Network
Australian Sickle Cell Advocacy Inc
Australian Thyroid Foundation
Australiasian Mastocytosis Society
Batten Disease Australia
BEAT Bladder Cancer
Better Access Australia
Brain Foundation
Brain Tumour Alliance Australia
Brainwave
Cancer Voices NSW
Cataract Kids Australia
Centre for Community-Driven Research
Charcot-Marie-Tooth Association Australia
CHARGE Syndrome Australasia
Childhood Dementia Initiative
Cystic Fibrosis Australia
Cystic Fibrosis Community Care
Cystic Fibrosis Queensland
Dystonia Network of Australia Inc.
Eczema Association Australiasia
Eczema Support Australia
Ehlers-Danlos Syndrome Australia
FARA
FOP Australia
Foundation for Angelman Syndrome Therapeutics Australia
Fragile X Association of Australia
Genetic Alliance Australia
Genetic Support Network of Victoria
Global Healthy Living Foundation Australia
HAE Australasia
Haemochromatosis Australia
HCU Network Australia
Head and Neck Cancer Australia
HeartKids
Her Heart
Hidradentitis Supurrativa
HSP Research Foundation Inc
Hyperemesis Gravidarum Australia
Hypersomnolence Australia
Immune Deficiencies Foundation Australia (IDFA)
ITP Australia Ltd
Kidney Health Australia
Leukaemia Foundation
Limbs4Life
Lipoedema Australia
Liver Kids Australia
LiverWELL
Lyme Disease Association of Australia
Lymphoma Australia
Migraine Australia
Miracle Babies
Mito Foundation
MND Australia
Multiple Sclerosis Australia
Muscular Dystrophy Australia
Muscular Dystrophy New South Wales
Musculoskeletal Australia
Myeloproliferative Neoplasms Alliance Australia
Neuroendocrine Australia
Neuromuscular WA
Pain Australia
Pancare
Parenteral Nutrition Down Under Inc. (PNDU)
Pink Hope
PKD Australia
Prader-Willi Research Foundation Australia
Primary Ciliary Dyskinesia Australia
Racing for MNDi Foundation
Rare Cancers Australia
Rett Syndrome Association of Australia
Sanfilippo Children’s Foundation
SATB2 Australia
Save Our Sons Duchenne Foundation
Scleroderma Victoria
SCNA2
Sleep Disorders Australia
So Brave Ltd.
Sotos Syndrome Association of Australasia
Spark of Gold
Stroke Foundation
Syndromes Without A Name (SWAN) Australia
Thalassaemia and Sickle Cell Australia
The Children’s Tumour Foundation
The Obesity Collective
Tourette Syndrome Association of Australia inc
Tuberous Sclerosis Australia
UsherKids Australia Ltd
Without A Ribbon
Arms-length grants to complete this work was generously provided by:
